Follow Seth and Help Find a Cure

Seth’s Journey

My name is Seth Quinn and I’m 22 years old. I was diagnosed with a very rare cancer, synovial sarcoma, 3 years ago. There is no cure for this cancer. In fact, the treatment options are very limited because this rare cancer receives less than 1% of 1% of research funding. I am raising money to support research for better treatment and a cure. Check out My Treatment page to see my journey starting with the most current events and please donate to support research to find a cure.

My goal is to raise $500,000 to fund the advancement of research for synovial sarcoma. The treatment options are extremely limited for synovial sarcoma and we are supporting research at Children’s Hospital of Pennsylvania (CHOP) and the University of Pennsylvania because they have the tools, technology and support to help bring new hope and new treatment options to synovial sarcoma patients.

So what do we get when we support this research?

We get dedicated time in the lab where doctors and researchers are studying only synovial sarcoma. It’s dedicated focus that will develop successful treatments for patients like me.

Given that synovial sarcoma is extremely rare and a low proportion of funding is dedicated to its research, most of the discovery and research of synovial sarcoma must come from philanthropic efforts like ours.

We need your help to complete the fundraising objectives.  All money pledged will be exclusively managed by CHOP and is 100% tax deductible.

We did it! We raised $100,000 to start research for a cure at UPENN!

We supported The Spence Family Synovial Sarcoma Fund and CHOP with our generous donors’ support and we raised $1,000,000 in April 2023 for the creation of a Tumor Registry/Tumor Bank and the National Tumor Board. The tumor bank now has over 50 registrants and is the single largest collection of Synovial Sarcoma tissue samples in the world! Let the research begin!

We Get Results!

There’s more than one way to support the research!

Purchase Seth’s Longboard Sticker and 100% of the proceeds will be donated to CHOP. $5+shipping

This Facebook page is dedicated to patients who are seeking data driven answers to complex treatments of Synovial Sarcoma.